Warrior Wall Beverly

“Hello, my name is Beverly. My great grandmother had endometriosis, my grandmother, my mother, myself and I have one cousin who has it, as well. I was eleven when I started having pain. It took me all the way to my first surgery at age eighteen to get help. My doctor, who actually delivered me,…

More From the Warrior Wall Project

As most of you know I am putting together a wall of art, pictures, and stories sent end by endo warriors. I hope to sell with wall to raise funds for the nonprofit I am setting up. Here are a few contributions. Check out my Instagram @endowarriors18 or my FB page for the full posts….

Warrior Wall Erin’s Story

*Warrior wall project* “Hi may name is Erin Shaw. I am 21. I have always had painful periods but I thought that was typical because of like tv shows and stuff where they would say ‘oh she is on the rag’ … In high school I was put on the pill… but it wasn’t till…

Warrior Wall Day 2 (official announcement)

It took me 11 years and 7 Dr. to get a diagnoses. In that time I had multiple complications that had the potential to be life threatening. Unfortunately this story is not unique. One study showed that 1 in 10 women have endometriosis. Endometriosis is one if the least understood and under funded disease processes…

A Year Since I Said Good Bye to My Hair.

This week marks a year since I decided to shave my head. Treatments were kicking in. My hair was thinning and I was getting a few balding spots. Waking up with a little more hair no longer attached to my head started to take a toll. It seemed like just one more thing this disease…

How The Education System Has Failed Doctors With Endo Patients

There is still argument among the best specialists out there of what therapies are warranted when, if only excision or excision and complete ablation is the best method. When surgery should be offered and use of pharmaceuticals… however there is no denying the fact that endometriosis is not taught as in depth as it should…

Endometriosis, Not a Pelvic Inflammatory Disease!

These stats blew my mind at the endometriosis summit this past weekend! We must stop treating endometriosis like a pelvic/GYN only disease and start treating it as a “complex disease state… [endometriosis] is a non-cancer malignancy and should be surgically treated as such… surgery to remove endometriosis [properly] is like an advanced sarcoma surgery… like…

Why The Standard Has Failed Us

According to the American College of Obstetricians and Gynecologists the “standard” for treatment of painful periods is STILL to treat for 3-6 months with hormones (without a diagnosis to what is causing the pain). These hormone treatments can be anything from birth control to Lupron. None of these treatments cure the disease or even have…

As 2018 Ends

Alright everyone! Today is the last day of 2018… I am home sick, curled up under the blanket with a fever. The year decided to end with a grand final act as I caught a cold. But I made it through the year and that is truly worth celebration. This is a lengthy post that…